EDCM Strategy Group

We have raised a number of issues and questions with members of the Every Disabled Child Matters (EDCM) Strategy Group. Here are their responses.

Aiming High for Disabled Children eligibility criteria
Direct payments and Aiming High for Disabled Children
Need for clear information about the different assessments
Better and earlier information about transition to adult services
Who can parents direct issues on health services to? - the feedback report will not upload to our system. Please contact us for a copy.
Who can we approach about concerns and feedback about LINK? - the feedback report will not upload to our system. Please contact us for a copy.
How well young carers groups are meeting the needs of siblings and attached report on visits to Young Carer organisations

Do you think they are listening?

Once you have read their responses, let us know whether you think they have listened.

What we think...

We are particularly pleased about the response to issues raised about young carers groups and the support available for siblings. We also now have an ongoing dialogue between Ormiston Trust and parents through the East Cambs network about young carers groups in the East Cambs and Fenland areas.