Health & Hospitals
This page has general information about health issues and hospital visits for Cambridgeshire parents raising children with additional needs and disabilities. If you are interested in more specific information, visit our other health pages:
GP Learning Disability Register
If your child or young person has a learning disability, make sure they are included on this register, so that they can get an annual health check from age 14 upwards.
People with learning disabilities often have difficulty in recognising illness, communicating their needs and using health services. Regular health checks can detect treatable illnesses and help prevent more serious ones, as well as familiarising the young person with the GP practice which they may use throughout their adult life. There are over one million people of all ages in England who have a learning disability but only 200,000 of these currently appear on GP registers.
Want to join the register? Download a template letter to send to your GP
The NHS Choices website has more about healthchecks for people with LDs
Hospital and healthcare appointment passports
If you are taking a child or young person with additional needs or disabilities to a health care appointment, a customised “passport” can be a huge help.
The passport contains important information about your child such as communication needs, support needs, medication, their likes and dislikes. The aim is make the visit to Addenbrooke’s smoother and easier for both the child and parents.
View our passports page for templates you can print and customise for your child. There are child and adult versions.
Good to knows ...
The NHS employs huge number of staff in thousands of locations. It is a large and complex organisation providing a broad range of services. It is not surprising that sometimes you or a loved one may feel bewildered or concerned when using the NHS. And this can be at times when you are feeling at your most vulnerable and anxious. The Patient Advice and Liaison Service, known as PALS, listens to patients, their relatives, carers and friends, and aims to answer questions and resolve concerns as quickly as possible.
Contact Cambridgeshire and Peterborough PALS
- Telephone: 01223 726774 or freephone 0800 376 0775 (office hours)
- Email (confidential): email@example.com
- Visit the Patient Advice and Liaison Service (PALS) website
The School Nursing Service provides confidential information, advice and help to all children, young people, and their carers in a variety of settings like schools. There is also a Special Needs School Nursing Service provided at the following Cambridgeshire schools:
- Spring Common School, Huntingdon
- Samuel Pepys School, St Neots
- Grant School, Cambridge
- Castle School, Cambridge
- Highfield School, Ely (outreach only)
- Meadowgate School, Wisbech
Healthwatch Cambridgeshire & Peterborough
Pinpoint works closely with Healthwatch Cambridgeshire – a network made up of individuals, community groups and organisations working together to improve health and social care services. They listen to what local people like and dislike about local services and then feed back to health and social care providers, helping them to plan and deliver better services that reflect what people want.
Nursing Nurture is an independent health visiting and breastfeeding support service based in Ely and covering Cambridgeshire. Sarah Oakley independent health visitor and lactation consultant, visits clients in their own homes as well as offering support in groups and clinics. Read more on the Sarah Oakley Lactation website.
Post Traumatic Stress Disorder
Concerned about a young child who has experienced or witnessed a frightening event? Get in touch with PYCES.
PYCES is a Cambridge-based research study run from the Medical Research Council Cognition and Brain Sciences Unit . The team is made up of mostly Clinical Psychologists and associated research staff. This study is funded by the National Institute for Health Research as part of their Research for Patient Benefit Programme.
Eligibility: Children aged 3 – 8 who have experienced or witnessed a frightening event (e.g. serious injury,road traffic accident, assault) and are showing signs of distress (e.g. avoidance, nightmares, irritability,trouble concentrating and sleep problems).
The PYCES study is still open for recruitment and will be taking referrals until October 2017.