An information and support hub for people with Down’s syndrome and their families in Cambridgeshire.
Organised by volunteer parents and supporters to provide and improve the information, services, support and activities available to children and adults with Down’s Syndrome and their families.
Email: info@CambsDSCN.org
Contact: Michelle Clark 07422 661970
Website: www.CambsDSCN.org
Facebook Private Group: https://www.facebook.com/groups/619708856345071/
X: @CambsDSCN
Every week during term time we are here (virtually) for you to have the chance to meet other parents who ‘get it’ and to get answers to questions so that you know the next steps for your journey. Every Monday morning during term time 10am-12pm.
We also run a monthly in person Tii Hub (currently in Huntingdon only).
We also have an online monthly profound and multiple learning disabilities group.
Details and booking are available on our events page.
Every month we run a participation session based on one of 4 themes where you will have the chance to meet the professionals who provide services for children and young people with special educational needs and/or disabilities.
The themes are Education, Health, Mental Health and What other help is available.
These are your chance to be heard by professionals to tell them what’s working, what’s not working and what would be better if… as well as asking your questions. Professionals will also bring ideas to the sessions to share with parents and carers to hear how you would like services to be shaped.
We are an online parent support group for parents with teenagers and young adults with Down Syndrome in the Cambridgeshire area. This group is a place to support each other, share important information regarding services within the Local Authority (education, health and social care) and also information related to activities for teenagers and young adults with Down syndrome.
Find us on Facebook (closed group): Cambridgeshire support group for teenagers/young people with Down Syndrome.
Spectrum
Spectrum is a parent-led children’s charity providing a range of inclusion-focused events, sessions, away days and support for families of children with Autism, additional needs, learning difficulties and disabilities.
Registration with them is free and they support families across East Anglia and the surrounding counties, from the very start of their journey, a clinical diagnosis is not required to join them.
As a registered member you can also access their Family Worker & Child Psychology support for SEND from the comfort of your own home. This covers many areas such as behavioural, child developmental, anxiety management, Education Heath Care Plans (EHCP), Disability Living Allowance (DLA), Personal Independence Payment (PIP) and Positive Parenting.
Additionally, alongside working with schools, they are a leading UK distributor for the Max Card, provide secure Minecraft servers for children with additional needs and also a supportive online community for families registered with them.
Contact Information:
T: 01223 955404
Facebook: https://facebook.com/spectrumcio
Twitter: https://twitter.com/spectrumcio
Instagram: https://instagram.com/spectrumcio
The Sensory Support Team hosts a family Support Group for families with babies/pre-schoolers who are Deaf/MSI/VI in a variety of locations throughout Cambridgeshire. The sessions are a fun way to meet families with similar needs for peer support and are led by a Qualified Teacher of Deaf children and young people and a Qualified Teacher of Vision Impaired.
For further information please contact: Sensory.SupportTeam0-25@cambridgeshire.gov.uk
“Parents supporting parents” group in Huntingdon offering a safe place to talk to others in the same situation and be heard.
Meets on the last Friday of every month at Huntingdon Youth Centre, Sallowbush Road, Huntingdon PE29 7AF and the first Tuesday night of the month 7-9pm at Huntingdon Regional College California Road, HuntingdonPE29 1BL
Open to any parent who is worried about their child or young person with social or emotional mental health problems. Not need or disability specific.
For information contact Mark on 07715 568984.
This volunteer-run charity consists of other parents who know what it is like to have a child with additional needs or a life-limiting condition and who understand the challenges you face.
Provides a free, safe environment with activities for all children with additional needs, disabilities and life limiting conditions and their siblings. This gives parents a chance to talk and get support with their problems from others who have faced a similar situation.
Little Miracles Ramsey, Ramsey Locality office, The Boundary, Hollow Lane, Ramsey, cambs, PE261DG.
Please contact LMRamsey chairperson Amy Clarke
Telephone :07715306112 Email: amy.clarke@littlemiraclescharity.org.uk
Website: www.littlemiraclescharity.org.uk
PACDDA is a local charity working to help people affected by dyslexia in and around Cambridgeshire and Peterborough. It runs Children Will Shine (CWS) sessions at Peterborough during term-times, on Mondays, from 4pm -5.30pm at the Heritage Park Primary School Community Hall, Park Farm Way, Park Farm. Peterborough, PE2 8XA .
PACDDA website has information and links to other organisations.
Email your queries via the website or get in touch via the PACDDA facebook page
