In this section you will find information on a range of topics that parent carers often ask us about.  Its not an exhaustive list and we are not the experts – you’ll find basic information to get you started and signposting to services who can help you on the next stage of the journey.  We would urge you to always seeks advice early from qualified professionals who can help and support you and your child.

Don’t forget that as a parent carer you can seek help for yourself from your own GP.


Brain Injuries


Eating Disorders and Difficulties

Mental Health

Managing Behaviour

Occupational Therapy and Physiotherapy

Self Harm

Speech and Language

Special Dental Care

Sexual Health and Relationships

NHS Vacancy for Parent Carer

Parent or Carer Co-Chair Expressions of Interest

East of England Neurodevelopmental Disorders Network

The East of England Neurodevelopmental Disorders Network is a new and exciting opportunity to bring together all parent/carers, clinicians and commissioners who support children and young people with a learning disability or autism across the East of England.

Covering Norfolk, Suffolk, Bedfordshire, Luton, Milton Keynes, Cambridge and Peterborough, The Neurodevelopmental Disorders Network aims to:

· Share examples of good, effective care and treatment

· Help to improve access to community services for children, young people and families seeking diagnosis and treatment of a neurodevelopmental disorder

· Support improvement in the quality of community services offered and provided

· Focus on understanding what is important for children, young people and families.

It will be led by the East of England Learning Disabilities and Autism Programme, who are responsible for the implementation and oversight of NHS Long Term Plan relating to: Improving services and support for children, young people and adults with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition.

What is the role of the parent or carer co-chair?

The Neurodevelopmental Disorders Network is looking for a parent or carer co-chair who will bring experience of caring for a child or young person with a neurodevelopmental disorder. They will understand the need to develop and transform community services for the benefit of all.

The role will include networking with other parents or carers and bringing their own views to the meetings, taking into consideration the limits of confidentiality. They will work with the Neurodevelopmental pathway meeting co-chairs to develop the agenda, lead the quarterly pathway meetings and be involved with any task and finish groups/workshops that may be developed through the pathway meeting. This role attracts a daily rate of £150 for 6 hours or £75 for half a day (3-4 hours). Travel expenses will be paid in line with NHSE expenses guidance.

How do I apply?

Expressions of interests should be submitted to Hannah Mann, Children and Young Peoples Lead, Learning Disability and Autism programme, East of England by Monday 12th October 2020.

Your expression of interest should be no more than 400 words and answer the following questions:

1. Why do you think you are suitable for this post?

2. What will you bring to the role?

We will hold virtual discussions with prospective co-chairs on Tuesday 20th October 2020. Discussions will be held with: Hannah Mann, Children and Young Peoples lead, Learning Disabilities and Autism programme, East of England, David Wright, Learning Disability and Autism CAMHS clinical lead and Matt Clarke, Learning Disability and Families Advisor.

For an informal discussion about the role please contact Hannah Mann.

We’re back!

We’ve been a little pre-occupied since Covid!  Now our children have returned to school, we’re back to a more normal routine too.  You’ll have noticed that we have paused all our face-to-face activity and swapped it for a full virtual online offer.  You can drop in for a cuppa at our online Tii Hubs or book for a workshop and join in with a live information session.  You’ll find all the latest events details (and the link on each one to book your free tickets) on our website.

You’ll also notice that our website still have live information relating to Covid and a whole section of ideas to try if you find yourselves back at home isolating.

We’re still here for you – on the website, on social media and at the end of an email:



Quick Guide for Parents

What are the Rules on Self Isolation? – a Quick Guide for Parents

  If the person has any of the Covid-19 symptoms (a high temperature, a new continuous cough, or a loss or change to their sense of smell or taste) and is awaiting a test result  

If the person has tested positive for Covid-19

The individual person Must self-isolate until the test result is received.

·       If this is positive, see right hand column.

·       If negative, the individual may end their self-isolation if they are well, no one it their household or support bubble has symptoms and they have not been asked to self-isolate by NHS Test & Trace.


Must self-isolate for 10 days from the start of symptoms and until there is no high temperature.
The person’s household Must self-isolate until the test result is received.

·       If this is positive, see right hand column

·       If negative, the household may end their self-isolation if no one has symptoms and they have not been asked to self-isolate by NHS Test & Trace.


Must self-isolate for 14 days from the start of their symptoms, or from the date of the positive test taken (if the individual has no symptoms). If any member of the household develops symptoms at any point during the 14 days, they must self-isolate for 10 days from the start of their symptoms and get tested.


The person’s contacts

(see below for details of who a contact is)

They do not need to self-isolate unless they develop symptoms or the person tests positive. Must self-isolate for 14 days from the last contact with the confirmed case. If they develop symptoms during the 14 days, they must self-isolate for 10 days from the start of their symptoms and get tested.
The households of the person’s contacts Do not need to self-isolate unless the Contact develops symptoms. Do not need to self-isolate unless the Contact develops symptoms.


A ‘contact’ is a person who has been close to someone who has tested positive for Covid-19 anytime from 2 days before the person had symptoms (or a positive test if no symptoms) and up to 10 days from the start of their symptoms (when they are infectious to others). So this means anyone who:

  • Is in their household (living together, sharing kitchen or bathroom)
  • Has been closer to them than 1m for one minute or longer
  • Has been within 2m of them for more than 15 minutes
  • Has had face-to-face contact (within 1m), been coughed on or had skin-skin physical contact
  • Has travelled in a small vehicle with them, even on a short journey.


You may also find this diagram about actions to take if someone in your household develops Covid 19 symptoms helpful.

Notice of Pinpoint AGM 2020

Pinpoint’s Annual General Meeting will be held 10th November 2020 12.30-1.30

You are invited to join via Zoom –

Meeting ID: 826 9200 3716, Passcode: 298034

Meeting Agenda

1. Welcome and introductions – Richard Holland

2. Apologies:

3. Minutes of 2019 AGM

4. Annual Report 2019/20

5. Treasurer’s Report 2019/20

6. Trustee elections:

a. Resignations during the year

b. Election of Officers:

– Chair or joint chairs – Vice-chair – Company Secretary – Treasurer

7. Staff changes to date

8. Going Forward

a. Pinpoint meetings and

b. Pinpoint Annual Conference 2021

9. Close

Pinpoint Annual General Meeting Minutes 1st November 2019

Bluntisham Village Hall, Bluntisham, PE28 3LR

1. Welcome and introductions – Fay Dutton

Attendees: Fay Dutton, Steve Wilson, Richard Holland, Margaret Sare, Christine Stocker-Gibson, Alison Griffiths, Miria Robinson, Bianca Cotterill, Judith Williams, Linda Green, Sarah Conboy, Liz Day

Fay welcomed all present.

2. Apologies: Chloe Wilson

3. Minutes of 2018 AGM

The minutes of the AGM were circulated, approved and duly signed.

4. Annual Report 2018/19

The Annual report was tabled. Fay reported that the new team had coalesced and were delivering the objectives. Pinpoint is becoming financially stable and is reaching more parent carers. Fay highlighted that we have secured new funding for which the groundwork was done in 2018-19 although not realised until 2019-20.

5. Treasurer’s Report 2018/19

The report covered three core areas: the money, external reporting and internal financial processes. Steve acknowledged that the report shows and drop in core funding coupled with a drop-in fundraising had led to an erosion in reserves. Expenses were less, in spite of rent increase, due to good budget control. A consolidated team structure and future income in the pipeline offsets the position. The Statement of Financial Accounts (SOFA) has been prepared is ready to be approved by Trustees and submitted in good time for the January deadline. In house processes are now self-sustaining.

6. Trustee elections:

a) Election of Margaret Sare as new trustee

Margaret was duly elected having been proposed by Fay and seconded by Richard.

b) Resignations during the year – Linda Green and Bianca Cotterill

It was noted that both Bianca and Linda had stood down as Trustees and had later taken up roles as part of the staff team.

Alison Griffiths and Steve Wilson have agreed to continue as Trustees. The updated constitution still requires some editing to fully achieve the changes envisaged regarding duration of trustee’s tenure.

C) Election of Officers: – Chair or joint chairs – Richard Holland was duly elected having been proposed by Margaret and seconded by Christine. – Vice-chair – Christine Stocker-Gibson was duly elected having been proposed by Fay and seconded by Richard. – Company Secretary – Alison Griffiths has agreed to continue as Company Secretary. – Treasurer – Steve Wilson has agreed to continue to continue as Treasurer.

7. Staff changes to date – were noted

a) Welcome to Linda Green, Bianca Cotterill and Laura Potter

b) Farewell to Sue Platt, Kari Payne and Carole Darlow

8.Going Forward

It was noted that there was a need to grow the Trustee base with more who have school age children with SEND.

9. Pinpoint meetings

It was noted that all meeting information can be found on the Website under ‘events.

10. Pinpoint Annual Conference Thursday 5 March 2020 at Burgess Hall, St Ives -noted.

11. AOB

SC was asked by FD to provide an operational update to supplement the 2018/9 activities and results set out in the Annual Report, as already discussed under item 4 and 5. SC outlined the following – the volume of work reported on in 2018/19 compared to the prior year; a more recent further increase in activities which is affecting workload which will be reported on in 2019/20; how the goals and deliverables of the team had been affected by the change in importance given by the Local Authority to their changing strategy; an increased interaction with parents and their conference feedback. FD noted the reference to 40,000 web views in the Annual Report, which was followed by a discussion about the importance of adapting the operational model to more online support for parents, at varying times of the day, rather than relying on day meetings. Time and introductions were also offered for website support.

12. Close


We’re Hiring!

We’re looking for an experienced communications officer with web development skills to join us.

We’re looking for an experienced professional to join our small and dynamic team and help us maintain and extend our reach.  We need someone who has the necessary skills and knowledge to hit the ground running with minimal training.  Working remotely will be a feature of this role in the current circumstances. 

Could this be you?   

Please see below the job description and person specification. 

Applications are by letter explaining how you meet our aspirations, together with your cv by 18th November

Interviews (virtual) are on 24th November, with the successful candidate available for an immediate start.  This role 13 hours a week, pays £13.60 an hour pro-rata and is term-time only.  Flexible working is an option. 

Please apply by email to 

Closing date: 18th November 2020 

Job Description – Communications Officer

Key responsibilities: 

·      Assist the CEO in the planning and delivery of the communications strategy. 

·      Manage, write content and update the Pinpoint website (a WordPress site).

·      Manage, write content and develop Pinpoint’s Facebook, Instagram and Twitter presence. 

·      Manage, write and produce Pinpoint’s information and marketing materials.

·      Produce marketing materials to promote Pinpoint activities.

·      Write and produce a monthly newsletter and distribute using an online marketing tool. 

·      Produce Pinpoint’s annual report with content input from Trustees and CEO. 

·      Produce surveys and polls using online tools and produce summary reports.

·      Manage the communications mailboxes and reply to client emails on behalf of Pinpoint.

·      Write and produce performance reports regarding the website and social media. 

·      Build and maintain Pinpoint’s image library. 

·      Produce copy for external publications in print and online. 

·      Lead on the planning, promotion, and delivery of the annual conference.

·      Proof all comms materials prior to publication.

·      Carry out any other duties in agreement with the CEO and commensurate with the role. 

Pinpoint Communications Officer Personal Specification

To be literate: to demonstrate a high standard of written and verbal English, commensurate with the role.


To be a competent proof-reader, able to demonstrate a good standard of proofreading, grammatical knowledge, and ability to do so under deadline conditions.


Demonstrable ability to use Word to a high standard to prepare comms materials.


Demonstrable ability to use Adobe, Canva, Word Press and other software to deliver comms activity.


Ability to work on own initiative, managing and prioritising workload to deadlines and confident in taking decisions having assessed priorities and risks.


Ability to quickly identify issues and risks and to use comms expertise to diffuse them or manage them in line with strategic aims of organisation.


Ability to build effective relationships with parent carers, the staff team, partners and a range of organisations and individuals. An ability to build rapport and demonstrate empathy through face to face, written and other comms activities.


Ability to communicate effectively with our parent carer audience with appropriate understanding of SEND issues and audience experience influencing tone, language and content.


Ability to flex communications styles between audiences and to produce a range of materials relevant to the different aspects of Pinpoint’s work. this may include contributing to fundraising bids, report writing and producing other documents such as the annual report.


To have strong presentation skills and good interpersonal skills, able to represent Pinpoint as and when needed, including delivering face to face sessions if required.


Ability to manage all aspects of comms work from strategy to creation, through to procurement and delivery.


Ability to work flexible within a small team and be a strong team player.




Understanding of SEND issues and parental experience


Highly Desirable
Knowledge of the voluntary/community sector organisations, in particular those working with families.


Highly Desirable
Knowledge of local service providers providing a service to families of children and young people with additional needs.


Highly Desirable
Knowledge of the needs of the families of children and young people with additional needs.


Highly Desirable


Experience of working in a comms role, designing communication activities and materials, producing copy, procuring print/advertising and delivering activity.


Experience in working in the voluntary sector, either in a paid or voluntary capacity.


Highly Desirable
Experience of delivering fast-paced environment with no additional human resource.


Experience of managing a multi-channel comms programme with particular reference to exploiting social media and online communications.




A letter from Service Director for Schools

Service Director for Schools, Jonathan Lewis, writes to parents regarding the recent government announcement on schools re-opening.


Dear Parent / Carer,
I am writing to update you about some of the recent COVID-19 developments affecting schools.

Recent Government Announcement on wider school reopening

Yesterday the government announced that primary schools will not be expected to welcome back all pupils before the summer holidays. However, schools that have the capacity to take in more pupils have been encouraged to do so. As we do not have any more information at this stage, we have asked schools to remain operating as they are now, and to not to make any changes to their current provision until further detailed guidance is issued by the government.

We are mindful that the majority of our schools met the government’s expectation to reopen for Nursery, Reception, Year One and Year Six on 1 June, but for many this meant committing all their resources. Unfortunately, many schools simply do not have the space nor the levels of staffing available to open to all year groups under the current government guidance. Admitting further children under current conditions is likely to take considerable additional resources and coordination at a national and local level, and this needs to be worked through before individual schools can begin to make their own plans for a fuller reopening.

Headteachers will review the situation on an ongoing basis, and will offer additional places to pupils wherever possible. The Local Authority, Multi-Academy Trusts and your child’s school will keep you up to date as these plans are developed.

Year 6 to 7 Transition
Schools are making arrangements for the transition of Year 6 pupils to secondary school.
Under normal circumstances, Year 6 pupils would visit their proposed secondary school during the final weeks of the summer term. These visits help pupils familiarise themselves with the school site, and to meet teachers and other key members of staff. This year, the government has advised that these visits should not take place, at least not physically. This is to help minimise the risks of spread of the COVID-19 virus.

Instead, schools are arranging a variety of online ‘virtual visits’. Some secondary schools have produced videos that give pupils a ‘virtual tour’ of the site and include introductions from heads of year, form tutors and others. Pupils may ‘meet’ their secondary teachers online. In addition, parents might be invited to attend a ‘virtual meeting’ at which staff explain how transition arrangements will work. Primary leaders are working closely with their secondarycolleagues to make arrangements that best fit local needs. These arrangements will vary, but we will be in touch to let you know where and when they are being offered. Ensuring that pupils stay safe during this process will, of course, be the number one priority.

Primary schools will transfer information about pupils in the usual way, so that secondary school leaders can plan to meet the needs of individual children. Many primary schools will share their predictions about pupils’ expected outcomes in the SATs, had those tests taken place. These predictions will be based upon the progress made by individual pupils before the start of the COVID-19 period.

Schools Capacity and Observing Social Distancing
As you know, those who are attending school have been placed into protective ‘bubbles’ of up to fifteen pupils. During the school day, pupils do not mix with those in other bubbles. The bubbles are essential to control social distancing and minimise risk, but they mean less people and more space needed. Unfortunately, this means schools may not find it possible to accommodate every pupil who wants to attend.

Each of our schools are different. Some are limited in terms of space, while many have less staff ‘on-site’, as they themselves may be vulnerable, or shielding others. I appreciate this may mean some parents cannot send their children to school at this point, and until guidance changes schools will be limited in their capacity to provide education for every child in school. Importantly, however, they will continue to support home learning.

Safety at this time is critical, and remains our number one priority. We have worked hard to ensure children and staff are protected in school, and we ask that families continue to observe social distancing outside of school. I have advised headteachers to use their discretion and not to admit pupils if they believe they have not socially distanced outside of school. It is vital that we keep our schools a safe place to attend for all.

School opening from September
At the time of writing, it is difficult to be certain about what will happen in September. Clearly, the government hopes that it will be possible for all pupils to be in school from the start of the 2020-2021 academic year, but it is likely to proceed with caution.
When I am in a position to offer parents further clarity on these or any other relevant matters, I shall write to you again. Meanwhile, may I take this opportunity to thank you for everything you are doing, and for your continued support during this difficult period.

Yours sincerely,
Jonathan Lewis
Service Director – Education
Cambridgeshire County Council and Peterborough City Council

Facebook Live Session on Disability Living Allowance – Higher Rate

Contact (formerly Contact a Family) are running a Facebook Live session on higher rate mobility component of Disability Living Allowance (DLA) for children with learning disabilities or autism spectrum disorders.

Most children who get the higher rate of the mobility component of Disability Living Allowance (DLA) qualify on the basis that physical problems severely restrict their ability to walk. However, even if your child has no physical problems with walking, they might still qualify for this DLA component if their behaviour is very difficult to deal with. This most usually applies to children with a learning disability or autism spectrum disorder.

Their next Facebook Q&A will focus on just this – claiming the higher rate of the DLA mobility component for children with learning disabilities or autism spectrum disorders. If you want to know more about this important benefit, ther Family Finance advisers will be on hand to answer any questions you have on our Facebook page on Thursday 28 May between 2-4 pm.